Compassionate Allowances List Update

New conditions the Social Security Administration recently added to the list:

  • Aicardi-Goutieres Syndrome 
  • Alobar Holoprosencephaly 
  • Alpers’ Disease 
  • Alpha-Mannosidosis 
  • Carcinoma of Unknown Primary Site 
  • Cerebrotendinous Xanthomatosis 
  • Child Neuroblastoma 
  • Child Non-Hodgkin Lymphoma 
  • Chondrosarcoma with multimodal therapy 
  • Cornelia de Lange Syndrome-Classic Form 
  • Ewing’s Sarcoma 
  • Follicular Dendritic Cell Sarcoma with metastases 
  • Fucosidosis Type 1 
  • Galactosialidosis-Early Infantile Type 
  • Glioma-Grade III and IV 
  • Hallervorden-Spatz Disease 
  • Hepatoblastoma 
  • Histiocytosis 
  • Hutchinson-Gilford Progeria Syndrome 
  • Hydranencephaly 
  • Hypocomplementemic Urticarial Vasculitis 
  • Hypophosphatasia Perinatal Lethal Form 
  • I Cell Disease 
  • Infantile Free Sialic Acid Storage Disease 
  • Juvenile Onset Huntington Disease 
  • Kufs Disease Type A and B 
  • Lissencephaly 
  • Lymphomatoid Granulomatosis Grade III 
  • Malignant Brain-Stem Gliomas-Childhood 
  • Malignant Melanoma with metastases 
  • Mastocytosis Type IV 
  • Medulloblastoma with metastasis 
  • Merkel Cell Carcinoma with metastases 
  • Myoclonic Epilepsy and Ragged-Red Fibers Syndrome 
  • Nephrogenic Systemic Fibrosis 
  • Obliterative Bronchiolitis 
  • Ohtahara Syndrome 
  • Orthochromatic Leukodystrophy with Pigmented Glia 
  • Pearson Syndrome 
  • Pelizaeus-Merzbacher Disease-Classic Form 
  • Pelizaeus-Merzbacher Disease-Connatal Form 
  • Peripheral Nerve Cancer, metastatic or recurrent 
  • Perry Syndrome 
  • Rhabdomyosarcoma 
  • Rhizomelic Chondrodysplasia Punctata 
  • Schindler Disease Type 1 
  • Smith-Lemli-Opitz Syndrome 
  • Spinal Nerve Root Cancer, metastatic or recurrent 
  • Stiff-Person Syndrome 
  • Tabes Dorsalis 
  • Wolf-Hirschhorn Syndrome 
  • Xeroderma Pigmentosum